Saturday, October 27, 2012

2 months can seem like forever....

Some of you may wonder what so many of my status updates, comments and secrets were all about these past two months. Well now that all is said and done I am ready to share what I have been up to… bare with me as I take you on this journey.  
On August 29, 2012 I entered McCallum Place for Eating Disorders. Now I do not have an eating disorder but because of all my surgeries in the past 2 years and being nauseated all the time I was down to about 80 pounds. This is a very dangerous weight and I was most defiantly malnourished.
So on August 29, I started a very intense treatment. I would be at McCallum Place seven days a week for ten hours straight. It was so very hard to be in this place that was so different but, at the same time I learned so much not only about myself but the girls that I spent two months of my life with.
Every day I would arrive in Webster at 9:30 I would start my day with a set of vitals and getting weighed. At about 10:00 we would have morning snack, then “homeroom” group for an hour and then another group till 12:30 when we would sit for lunch. After lunch we would “post” (go around and talk about the meal and how we felt… physically and emotionally). Then it was group time until afternoon snack which took place around 3:00. Then another round of groups, or napping, or even just journaling. Dinner would be at 6:15 with post following and then at 7:30 it was time to go home.
During the week days we would also meet with a therapist three times, a medical doctor once a week, a dietitian two times a week and a psychiatrist or resident two times a week. They would pull us from groups if it was our turn to meet.
Before my first weekend there would come and go I changed from eating 75% to 100% and stayed on that amount the whole time I was there. By weekend number two I had add-on’s (this would be some other food to get even more calories.) That put me up to 4400c calories a day and let me tell you my stomach and body did not always like it.
I cannot lie there were days that I thought I wasn’t going to be able to do it; even times when I wanted to give up and just do it all at home. I had days of nausea and I even had to go to the hospital for my asthma at one point. About a month in I felt so sick and my weight wasn’t moving and I thought I would have to have a feeding tube “dropped” I was able to get out of that by staying positive and just working as hard as I could at eating and breathing and realizing that it was okay to have help and I was not a failure.
With all the groups and working with my care team I learned a lot about myself. The biggest thing was allowing myself to have other feelings. I didn’t have to be happy or even strong all the time. It was okay to lean on others and need them to help me get through hard times.
I have been “strong” for as long as I can remember and it still is hard at times to admit that I am scared, worried or even that I feel alone. All these knew feelings are very real and are taking some time to describe and label but just like everything else I have done I am doing this. I know how to listen to my body now it is time to listen to my emotions as well. I also learned that I deserve things that I otherwise thought that I didn’t.
I met some wonderful girls and have made some really great friends! We all have each other’s back! It’s pretty cool to have a cheering team whenever you need them. I would never change my path for it has taught me a great deal and has helped shape me into the woman I am.
When I entered McCallum Place on August 29, 2012 I weighed 80lbs
When I was discharged on October 24, 2012 I weighed 108lbs.
I am so proud of myself, I feel better, I am able to work out again and for the most part I have little to know nausea. Can’t lie this new role of “living” is a little hard to get into but I sure enjoy it a lot more then feeling and being sick as much as I was.
I want to thank my family and friends for all their love and support. Thank you for all the prayers and kind words. Truth is you can do anything you set your mind to doing… I’m living proof!
Love and prayer until next time,
Em

Sunday, September 23, 2012

My Rock



Sometimes you just need to let the love of family and friends carry you along on the days you feel you have no strength.... let them be you rock, your support. That glimpse of the light at the end of the long dark tunnel.



 
Look at all the love and suport on my side!!
I CAN DO THIS!
I WILL DO THIS!

Wednesday, September 12, 2012

Real or Not


It has been one of those days that never seem to end... and I am so mentally and physically drained and this point in time the only direction from here is up. And I hope this change of course comes sooner rather than later.

 

"You’re still trying to protect me. Real or Not Real....

'Real' because that's what you and I do... protect each other."

Sunday, August 19, 2012

Until Next Time

                      Dr. Connors, Me, and Dr. Daud on Dr. Connors last day.... These 2 men take such wonderful care of me!! Love them both so much!
It has been said that saying "See you later." is so much easier then saying "Goodbye" and I believe that this may in fact be as true as true can be.

Tomorrow August 20, 2012 one of my favorite doctors is moving back home to Utah. I am very happy for him and... Well kind of sad for me. You see he came to Missouri Baptist the month before I had my first open heart surgery with Dr. K back in August of 2010... in fact that anniversary is coming very soon. But anyway Dr. Connors has been with me through thick and thin. He has seen me at my lowest and at my happiest. He was even there when I wasn't even in the hospital to see him. This man is a very talented surgeon and I know that he will do great things where ever he goes. I just wish he could stay here in case I ever need his handy work again. Here is praying that I don't and that I can stay out of the hospital for a very very long time!

So last Wednesday I went to see Dr. Connors one last time. I had a perfectly picked out card that said "bye" in many different ways then on the inside it told him the translation of "this really SUCKS" and to me it totally does. I also went on snapfish and made him a little picture book with quotes, song lyrics and many awesome photos that I have captured over the past almost 2 years. He seemed to really like it and promised that he would sit down later and look at it more closely (as he had patients waiting to see him) and that he would email me soon so that I could keep him updated on all my happenings here in St. Louis! It's rough knowing he won't be there but I know that there are other doctors and that sometimes people just have to do what’s best for them even if you don't see it that way.

" I've heard it said
That people come into our lives for a reason
Bringing something we must learn
And we are led
To those who help us most to grow
If we let them
And we help them in return
Well, I don't know if I believe that's true
But I know I'm who I am today
Because I knew you..."

Wednesday, July 25, 2012

God's Time


Spent about 5 days at my home away from home but am doing better and on the road to where I should have been going this whole time...

you know how they say you end up where you are suppose to be... well these past 5 days have been just that. I have learned so much about myself and the journey I am on. I was reminded that people come and go and time does change people but it is still okay to let them in... let them love you the best way they can!

I am so grateful and oh so loved! Thank you all for all your kind words, love and prayers! You are all in my life for a very special reason and I am who I am because of all that has happened to me and all those who have been on this amazing path with me!

love you

love me!


Thursday, July 5, 2012

Love


On June 20 I had hernia surgery. It went really well but it was such a mess of a hernia that the doctor kind of had to make up the repair as he went. He did however have to put a JP drain and that was a little on the gross side and this past Monday July 2 it was removed! Also because of all the past surgeries and the constant nausea I have no fat on my body... in fact the doctor said I might be able to feel the repair until I gain some weight. He was right I can feel it... it's not awful just weird.

On June 21 I had a bronch that went well also! I had amazing visitors and was able to get some good rest. I came home on the 22nd and was back to work on the following Tuesday! What can I say I have to keep living and moving right along.

I try to not let surgery or being sick run my life... I have Loeys -Dietz Syndrome so I don't always know what is coming but I trust that I know my body well enough that if something is wrong I will get help I also have wonderful family, friends and doctors all of whom do anything and everything to keep me well and active. I also know that I cannot live in fear of what "might" happen. It is so much easier to live life and enjoy every moment I can.



Just some pictures of family and doctors that have changed my life for the better! Made me the "STRONG" woman I am today!

Wednesday, June 13, 2012

So much to DO so LITTLE time...


It always seems that I have more to do in a day then there are hours on the clock this meaning something usually has to give... and lately it’s been my sleep. But I must soon change my ways because I am finding that it is very hard to function on 3-4 hours of sleep thus making all those things that I need/have to get done 10 xs harder.

So tonight I will go to bed at a decent hour so that I can wake up ready to accomplish my day!

I’ll give it a week see where it gets me! My guess is not only will I have energy for my day but I will also get things crossed off my to do list!



You are not defeated when you lose. You are defeated when you quit.”